Lupus Discussions

Christine M Benlysta Buddies: Lets start a discussion for all of us on this new drug Hi everyone, Benlysta is the new drug that was approved for lupus. I know many of us are on it, or…
By Christine MPA Latest Activity May 4 at 12:26 am Replies 12 Likes 2
Kiki5 Nasal hallucinations So, I have been off here because I have had some very funky symptoms and they may or may not…
By Kiki5 Latest Activity Yesterday at 2:03 pm Replies 5 Likes 1
M4Luv Is this Lupus related? Is it normal? 3 things that I'm worried about 1)My scalp has become increasingly, yet intermittently, sensitive..like extremely. It was at a new worst at my hair dressers where…
By M4Luv Latest Activity 2:26 pm Replies 2
1stladydi A Scary, Sleepy Experience at Work Okay, now I am getting to be very concerned. I found myself unable to stay alert and barely awake at…
By 1stladydi Latest Activity 6:09 am Replies 2 Likes 1
Dr Gary Quick Opinion Poll: How do feel about your doctor? Love? Like? Tolerate? How would you describe your relationship with your physician? Before you answer that, does the word “love” come to mind?
By Dr GaryCA Latest Activity May 17 at 12:20 pm Replies 22 Likes 2
lilysgrandma Lap Band Surgery and Lupus Hi all....I was wondering if anyone here has had lap band surgery and also lupus. I cannot stand this 'overweight'…
By lilysgrandma Latest Activity May 10 at 11:49 am Replies 5 Likes 1
catlady04240 Drs in Maine Just want to find a rhemy that understands lupus and all that goes with it just have a NP right…
By catlady04240 Latest Activity Yesterday at 1:13 pm
Mamie1 Happy Mother's Day! For those of you who are mother's, enjoy this day. Although I think most of us would agree- Every day…
By Mamie1 Latest Activity May 13 at 12:26 pm Replies 1 Likes 3
Cootsgal It's a Boy Thing..... My beloved husband has recently had a stomach bug which means the world stopped revolving around the sun and only…
By Cootsgal Latest Activity May 14 at 12:25 pm Likes 2
MemeLupie Lupus and Alopecia Is anyone experiencing extreme hair loss or alopecia??? I was dx with SLE 19yrs ago and almost 3yrs ago…
By MemeLupie Latest Activity May 9 at 5:16 am Replies 3 Likes 1
catlady04240 Lupus and spleen Just been having a lot of chest/back pain and drs ordered blood test and chest xray no pulmonary embolism I'm…
By catlady04240 Latest Activity April 27 at 1:03 pm Replies 8 Likes 1
Raven1968 Autonomic nerveous system I have lupus sle. I have had heart ,lung and GI involvement. I was told now I have autonomic nerveous…
By Raven1968 Latest Activity May 6 at 12:41 pm Replies 2
AnnieGirl89 Acceptance I’m definitely starting to accept all of this stuff that’s happening in my life. This craziness, this insanity. I am…
By AnnieGirl89 Latest Activity April 27 at 5:40 pm Replies 6 Likes 3
Raven1968 Crossroads in treatment. Dr Gary I would like your opinion on a few issues as well as your thoughts however I am new…
By Raven1968 Latest Activity April 27 at 11:04 am Replies 3
Bastset Pillows? Lately, my neck (where the skull meets the spine) has been hurting enough that I cant really look left or…
By Bastset Latest Activity May 1 at 12:41 pm Replies 2 Likes 1