Visual problems, reading problems, muscles stressing

I have problems with my eyes too. My eyes get blurry and I have alot of trouble with light sensitivity. Any kind of light bothers my eyes and I really think it is related to my meds or even Lupus related. I have been to a couple of dr's but they don't seem to find anything wrong. It's frustrating. Does anyone else have that problem with the light?

I have the same problem as well. if you are on Plaquenil it could affect your vision. I get blurry vision all the time. I find that sometimes readers help. You just need the low dose ones like 100 I think. Ao you should get an eye exam once a year if you are on plaquenil. As far as positioning goes…I believe that is a part of the Lupus and yes it is VERY frustrating! My joints will not let me sit in one position for any length of time. I have other health issues but I have heard of others with this same problem. En typing these short posts hurt my hands and wrists and I have to stop fequently. Craziest thing. hope things get better for you!

I do have the same problem, and I believe it's lupus related. I can only read or be on the computer for so long, and then my eyes get blurry and irritated. It usually last a couple hours afterwards. I also have more trouble with my night vision as well.

i probably should go and get them checked but I am so tired of doctors test co pays and bills. It always last for a bit a fades where it is more tolerable. When I am flaring it is worse

When I am flaring mine is worse also. I see an opthalmologist every 3 months. I know what you mean about copays and bills. It seems like I'm going to one or more doctors a month because everyone wants you to come back for a recheck, and then the other half of the time I'm in a flare and see the doctor regularly for that. Not to mention all the diagnostic testing done. It can get pretty stressful, and worrisome.

I do, I checked my emails to day, their were so many… I got through some of them and started to cry, I still have not read all of them. I have to stay away from the computer, some days. I think it is the Lupus At 2:00 to day i could not see to read any thing on the computer, i had to step away from the computer for a while now i can see fine.

I there anything we can do ?? I feel like stressed and irritable when my eyes just don't relax and see right like now iam typing but not really looking or focusing it bothers me to much

I, too have constant vision changes, age and disease related. Cataracts make it hard to see at night, they aren't to the point of treatment yet but I get new glasses and in 3 months need to have the RX changed…have to wait for insurance so is very frustrating. Can't wear contacts due to dry eye. Driving is getting harder as I find my response time to be lagging. Only 52 so this is very concerning. Been on Plaquenil for 7 years but the side effects of this drug are not what I am experiencing according to my retinal Dr.
Am taking prednisone right now and am feeling a lot of pressure behind my eyes right now. WBC was 3.O and my feet and legs were swelling so got on the roids but am wondering if swelling is from Lyrica. All so crazy!

I wear contacts during the day, and then reading glasses on top for books and computer. I have lost my night vision. I used to see like a bat.Aging is a small part too.Not fun at all.

my night vision is gone as well…it seems to take alot longer for my eyes to adjust to any changes in light

Ive noticed in the last year or so that my vision is getting increasingly worse. In the last 5yrs I've gone from only wearing glasses to read and maybe watch TV, to wearing them full time. I also remember that I began wearing bifocals at the age of 32/33, long before I was Dx'd with SLE but I had my suspicions.

I'm not on the standard meds for SLE since Im allergic to almost everything but I do believe that the Lupus has something to do with the vision loss Im experiencing…as well as old age lol!!

Hi I noticed you are allergic to almost every thing. I find this is aproblem. I told my DAd that if I gave up eating , drinking , breathing and sex I be ok what say you

I have wondered the same thing myself for too many years to count!!

lol I have never noticed sex being ,on the top ten problems, lupus gives them!

Hi I know we should discuss sexuality. Diseases take toll on relationships and this is an area we still are skiddish about. treatments can interefer and the disease itself.

Between meds, fatigue, rashes and pain… my desire level is nil and I hate it because my other half; understanding though they are much of the time, is also a lot younger than I and has a very healthy sex drive. I almost start to feel guilty sometimes but I cant allow myself that luxury.

yes if you feel tired, and dizzy and like you have been throu a ringer ..really sex is not on your list of things to do that night..lol mine is sleep and leave me alone

Oh my i thought i was alone as this problem is mine too… My husband gets mad because i'm so tired at night and the thought of sex is not on my mind. He doesn't understand that i just want to sleep and rest.. Thanks i was getting so stressed cuz i didn't think anyone would ever understand me…

I know just how you feel Cyndi. I am fortunate to have a very understanding husband most of the time, but the lack of physical intimacy when I am flaring wears on him and has put stress on our relationship, so you are not alone.

Way to go ladies.I know" when we look so good"…How canwe feelso bad…

since being placed on the meds I find that my eyes fatigue much quicker when reading…sometimes it gets so bad my vision is blurry for hours after I stop reading or using the computer

What medicine are u I take generic cellcept and nambumtone

started out with plaquenil…currently on imuran and steriod shots

I dont think your alone on that ..I have in my living room a fireplace, with a big flat screen above it ,,and when I sit off to the side on one of the couches, were I have to tilt and turn my head up ..I get this little panic attack where my shoulders and neck tense ..must be a neuro thing like you said …usually I go get a ice rice bag and change places and it helps..just another thing that you notice as time goes on…
Like we need more things that stress our bodys!
sometimes we figure out things, and can change there affects on us !

I find myself avoiding situations that I know will cause discomfort That I do not like. I like researching and trying to educate myself to prepare myself for what I can. I gave up a lot of athletic activity and now avoid reading and avoid muscle stressing situations I seem to stress in positions like cake decorating or lifting my arms. I love to excercise I can no longer play softball bend at the knees. I squat like a falling tree and forget about getting up I have to pull myself up. I do go to cycle class. I want to lose weight to help the stress on the joints and knees. I hate what is happening but very thankful that it has not progressed to life threatening so I am very fortunate. I just wish it would go away