© 2012 Human Genome Sciences and The GlaxoSmithKline Group of Companies. All rights reserved.
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Your Voice Can Create Change
To receive optimal care, it is essential to have a strong relationship—and partnership—with your doctor. Through Lupus Out Loud, let’s join together and make our voices heard.
- Contact your doctor.
- Make an appointment and share how Lupus is really impacting your life.
- Pledge to have an open and honest conversation about all your symptoms.
Join the Lupus Out Loud Movement
If you have lupus, you may not feel that your voice alone is powerful enough to make a difference. Now is the time to raise our voices together to put lupus front and center. Through Lupus Out Loud, join thousands of people across America speaking out about the true impact of living with lupus. Reach out to each other and — most importantly — reach out to your doctors and let your voices be heard. Speak openly and honestly about all your symptoms. Share the Lupus Out Loud video with others to see how thousands can create change. Together, all at once, we can make a difference!
Get Involved
Pledge to Join Lupus Out Loud
There are several ways for you to join Lupus Out Loud. Take the pledge and see how the movement is growing - the collective voice is more powerful than one!
- I pledge to call my doctor and schedule an appointment to discuss how lupus is really impacting my life.
- I pledge to speak openly and honestly about all my symptoms—big and small.
- I pledge to support my friend or family member with lupus, and encourage them to make an appointment with their doctor to discuss their symptoms.
More Information
Learn More at the Us in Lupus Website, usinlupus.com
For more information on lupus, visit the us in lupus website, usinlupus.com—an online lupus community. Hear from others with lupus and find various resources to help you better understand and manage your lupus.- To track your symptoms, use the Lupus Impact Tracker™.
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For tips on preparing for your next doctor’s appointment, use the
Doctor Discussion Guide. - To receive first-hand tips and advice, join our Lupus Community.
Lupus Impact Tracker is a trademark of Rush University Medical Center and the Board of Trustees of the University of Illinois.
National Burden of Disease Survey, slide 31 (46% describes very well / 41% describes well), patients statistic “I minimize the pain or worries I experience because I don’t want to upset my family”
2National Burden of Disease Survey, slide 39 (19% strongly agree / 33% somewhat agree), patients statistic “I tend to minimize my symptoms when I talk with my physician”
3National Burden of Disease Survey, slide 40 (21% strongly agree / 27% somewhat agree), patients statistic “I have difficulty describing my symptoms to my physician”
4National Burden of Disease Survey, slide 42 (43% somewhat disagree / 29% strongly disagree), physicians statistic “My patients minimize their symptoms when speaking with me”
Why Speak Out
Why Do We Need to
Speak Out About Lupus?
It’s no surprise that lupus can be tough to talk about – especially when your symptoms may not be visible to others. A survey – conducted by GfK Roper North America, and funded and developed by Human Genome Sciences and GlaxoSmithKline – found that many lupus patients don’t share the true impact of their disease with their family and friends, and more importantly, with their doctors.
- 87 percent of people with lupus in this survey reported that they minimize their pain and other disease-related concerns to avoid upsetting their families. 1
- Over half (52 percent) of people with lupus surveyed reported that they minimize their symptoms when speaking with their doctor. 2
- Almost half (48 percent) of patients say they have difficulty describing their symptoms to their doctor. 3
- Nearly three-fourths (72 percent) of doctors surveyed said they were not aware of patients minimizing their symptoms. 4
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